Breaking the ice (on medical trauma)
Medical traumatic
stress refers to a set of psychological and physiological responses to pain,
injury, serious illness, medical procedures and invasive or frightening
treatment experiences.
The air smelled clean. Like the memory had attempted to be
scrubbed from the walls. The smell of cleaners and disinfectants stung my nose.
I remember thinking everything looked so clean. The bed was made, things were
picked up off the floor, the counter had been tidied. It was so contrary to the
way we’d left it, in panic and chaos, and it reminded me of returning to the
scene of a crime after it was all over. The blood had been washed away, all
incriminating evidence had been removed but in the eyes of the person who had
witnessed the tragedy the location would never be the same again.
I could still see the
blood splattered walls. To anyone else walking in that front door they would
have seen a clean house but to me everything spoke of what happened that night.
I walked into the
bathroom and it was like I was walking back in time. I remember thinking if I just
got to the bathroom everything would be ok. I remember the black spots dancing
across my vision, the splitting headache that came seconds before I threw up,
barely making it to the sink, not awake enough to hold back my hair and only
moments later thinking to move it out of the way but by then it was already too
late, vomit coloring the ends.
He came before I could
even say anything, my body wracked by this vomiting so hard it shook my
shoulders and popped things out of place in my shoulders, down my spine, along
my rib cage. I remember being afraid but I had no way of saying I was afraid. Being
afraid was not an option because if I wasn’t in control no one would have any
idea what to do. The whole time, on the way to the hospital, as we sat in the
waiting room for what felt like hours but was in reality probably only a few
minutes, as I waited for them to put in the IV that would deliver the life
saving treatment, I kept thinking “Someone help me.” I was trying to be ok but
it felt like I was falling apart on this cellular level. And even when they did
start responding, when help was given, I knew I had been referring to something
deeper, something they couldn’t touch with the fluids running through my veins.
I so desperately wanted someone to trust when it became evident that I could no
longer trust my own body. But there was no one to trust, no one who knew what
was going on and what needed to be done and how fast to act. There was just me,
and the world narrowed into this small, solitary thing. Every once in a while I
would hear something and it would pull me from my head but for the most part I stayed
in this alone space in my mind. I felt so deeply afraid but felt I had no way
of communicating that to anyone. I wanted to return to a place of orientation,
where I had some degree of trust in myself and my body. But that too had been
stripped from me in a way no one else could understand. And I think that’s why
it was so isolating. It was just me and the trauma, and no room to breathe.
Many factors may
affect a person’s vulnerability to medical trauma such as a pre-existing mental
health diagnosis, perceptions about the quality of care, level of trust in
one’s medical team, and factors related to treatment (e.g. the length of a
hospital stay and types of medications used). Hall says another important
factor is the sensitivity of medical staff. “When care is not patient-centered,
empathic, and sensitive to patient’s emotional health, patients can suffer as a
result. The sensitivity of a professional’s communication plays a central role
in how people experience traumatic medical events and how they cope with the
decontextualization and disempowerment of being patients.”
I’ve had this theory for a long time now about how being a
patient causes trauma. No one ever talked about it, and for so long I just
thought it was this idea in my head. When I was younger, I remember
experiencing these feelings of acute trauma but feeling as though I couldn’t
express them. Whether that feeling was self-imposed or communicated by others I’m
not sure, though I suspect some of both, I grew up and into this idea that one
doesn’t talk about medical trauma. The first time I heard the word it felt like
ice being broken for me. This was a thing, something other people felt too. I wasn’t
alone. The trauma that happened inside my head, inside my body, wasn’t just
this thing that made me crazy but it was real and it was trauma and it was
recognized by science as being this traumatic thing. Growing up I received the
message that my medical treatments were just something to be endured. You smiled
and were polite and didn’t argue because this was just the way things had to
be. Even in the media the patient with a severe illness or injury is looked
upon as this beacon of hope and strength. It’s something I’ve heard countless
times, the saying “You are so strong.”
And all of these
things, at least in the way I received them in my mind at the time, left me no
room to feel angry or sad or betrayed by my body or afraid. And I was all of
those things, but I felt like they had to be pushed aside in order for me to
continue being this beacon of hope and inspiration, to be able to be polite in
situations I didn’t want to be in and to endure painful tests that made me want
to scream. So I stopped being angry and I stopped feeling this deep betrayal by
my body and eventually I just stopped feeling.
“We can also miss the
presence of medical trauma,” Hall says, “because many patients likely suffer
the effects in silence. We are socialized to endure medical treatment and often
we expect both ourselves and others, especially adults, to ‘just deal with’ the
emotional effects of care on the psyche. We ask, ‘How is your pain?’ or ‘Any
side effects of the medications?’ rather than inquiring about fear, sadness,
worry, and the myriad emotions people face as a consequence of their medical
event or illness.”
Lately I’ve been doing some deep body soul work. It begins
with acknowledging the trauma that has resided in my body all of these years. I
wonder if that isn’t why this time, this hospital stay, this trauma I felt more
while it was happening than any of the others. Because I am no longer silencing
the voice of my trauma, it gives me room to feel it as it happens. Triggers are an opportunity for healing. Instead of shutting down when the memories come, when I am discussing personal details of my body and my medical history when I’d much rather drop the whole thing and stay silent and “safe”, when these painful procedures and treatments bring up feelings in me that feel more comfortable to avoid and are things I don’t know what to do with, I’m using them as an opportunity to breathe into this new space and invite growth to happen, for air to move into this place that was once stagnant. I’m being gentle with myself, because I know that’s the only way I’ll get through this without making myself smaller. And I know I’ve spent too long making myself smaller, avoiding, pretending, hiding in the shadows. I want to roar, to bloom, to move beyond trauma and into healing. And that starts with acknowledging this simple truth.
I am afraid.
italicized quotes from socialworktoday.com on medical trauma
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